The 29th February was #rarediseaseday. Having Spinal Muscular Atrophy puts me in with the 300 million other people with a rare disease. When speaking about my condition I’ve always pointed to what I can do. Indeed my career is about what most disabled people can do today, and how society can include us even more… Continue Reading
disability
Sir Bert Massie – A life without limits
Over the years I’ve totally geeked out on both disability rights and civil rights. There’s nothing better than a leader building a movement, defying the odds, and beating Goliath. A big reason for me wanting to learn about this subject, is to inform my disability activism today. “We have to understand the past to shape… Continue Reading
Personal Growth and Global Contribution
It’s been a frustrating week. The inevitable winter bugs have arrived. In fact I beat a minor cold three weeks ago. However this particular cough is starting to take the biscuit. I’m definitely a bigger fan of summertime. Of course I’m not the only one. Most of my friends and family have had it too…. Continue Reading
Ingredients for a Good Life
These posts often start with a quote from a Greek philosopher, a mention of Maslow’s hierarchy of needs, and end with the fact a perfect life is in your control. Most of this is true. The Greeks knew universal truths that still exist today. Maslow is correct that we need food and shelter before aiming for… Continue Reading
Published Author, Keynote Speaker and Accessible Travel Expert
I cannot believe it’s almost March. This year is flying by. I’ve been feeling guilty for not writing to you more. However I’ve been hibernating, planning and organising the coming months. Whilst this isn’t conducive to articles, it is going to provide loads of content for you very soon 🙂 Apart from my husky dog… Continue Reading
Accessible Husky Dog Sledding in Finland
Back in October 2012 I was on the accessible beach in Tenerife and met a fellow wheelchair using blogger. We had a brief chat about travelling with a disability, exchanged contact details and headed off. With minimal contact, three years later Sanna emailed me from her homeland of Finland. She took the time out from… Continue Reading
Speaking at the International Accessible Technology and Tourism Conference in Madrid
Last week I was invited to Madrid by the huge national Spanish Charity, Once. They are funded from the sales of lottery tickets, and run many projects for disabled people. Their staff and board of trustees are heavily represented by disabled people which I applaud. The conference was to celebrate technology and tourism in the… Continue Reading
Sparks of Change
Peaks and Troughs. Ebb and Flow. However much I strive for consistency, it always seems to evade me. Partly because I guess ‘that’s life’. Partly because I seem to like to mix things up! I tend to regularly kick off new challenges. From finishing 2014 tired, living back home, and struggling with a deterioration in… Continue Reading